It’s a Christmas miracle! 😉

I’m not very tech savvy, but I’m a mod of some fairly large communities hosted on feddit.uk. Can someone ELI5 what, if anything, I need to do to keep my communities up? !badrealestate@feddit.uk is the one I’m most keen to keep going.

I was disappointed too. I’ve never liked weed - the smell, the fuss, the mess, the taste. Blugh. I’d hoped oils would be all I needed but there’s no denying that dry herb vaping is more effective for my symptoms. The private pharmacy is going to start offering gummies as an alternative to herb, maybe that will work for me? Fingers crossed!

I didn’t want to say it if it wasn’t already on your radar, but I have PoTS and know a number of people with jejunostomy feeding tubes due to their gastroparesis. I even know a girl on parenteral nutrition. I don’t think I’ve ever met anyone with nausea as their main symptom though so I didn’t think of PoTS until you mentioned you’d researched it.

I love the acknowledgment that it’s not your body - you sound like a loving, supportive partner 🙂 Sometimes the “answer” seems so simple when you’re not the patient but when you’re chronically ill, you’ve already lost so much control over your body… having to take a drug you don’t want to feels like a step too far. It’s hard to explain and I’m not doing a very good job!

THC is not remotely in the same category of awfulness as a feeding tube so I’m glad she’ll probably try that first. And you don’t need to get high high to feel the anti-nausea/pro-appetite benefits - I use less than 0.25gm a day, maybe even half that and it does the trick just fine. Wishing your wife better soon!

I think I did that thing when you start a conversation in your head and then your comment posted mid-thought has no context, iykwim?! What I was thinking was: Feeling nauseated can reduce your appetite, as can repeated vomiting and the anxiety associated with it. People with chronic nausea tend not to want to eat, and not eating (or vomiting what you eat) is far more medically problematic than experiencing nausea. Hence, stimulating appetite as well as suppressing nausea is what makes medical cannabis so useful for cancer patients. But OPs wife isn’t going to see the anti nausea/increased appetite side effects from CBD alone. THC is the more important cannabinoid, and if she’s no longer pregnant/breast feeding she shouldn’t have a problem getting it prescribed- even in the UK. But it will be a private prescription here which is expensive af.

Both CDB and THC reduce nausea.

I’ve been prescribed medical cannabis for over a year now and neither CBD or THC oil do anything for my appetite. Vaping dry herb does though, even the low THC stuff. Maybe I’m weird though!

CBD oil does wonders for my arthritis, depression and anxiety though. And I slept for over 6 hours for the first time in 2 years when I started THC oil.

I’m a really big reader and have had 4 or 5 kindles now. My latest is the oasis and it was a considerable payout for me but I absolutely love it. I rarely pay for books, but kindles have a send-to-kindle function so you can download books from anywhere in any of the main formats and just email it to your kindle.

E-reader screens can seem really basic to the uninitiated but the paper white/oasis is just like reading from a book imo. Except you can read it in the dark too.

I feel you. This is the second winter we’ve only been able to heat one room to at least 18C, and that’s not warm enough for my disabled ass. My electric throw blanket is on 24/7 though and is incredibly efficient - it costs less than 25p a day. I would highly recommend one if you can manage the upfront cost. Also wrist warmers are highly underrated imo - cheap, you can knit/crochet them yourself, your fingers are still free for touch screens and they seem to keep me warmer than just a hat alone. Wishing you more comfortable times ahead, friend.

The DWP ignored reports that linked the suicides of 600 disabled people to them failing “capability assessments” in just a 3 year period.

And yet Jeremy Cunt and the rest of the tories are targeting the sick and disabled once again with their “back to work scheme”. Fuck those arseholes so much. I used to say I wouldn’t wish lupus on anyone, but Tory politicians might just deserve it.

I returned it to the supermarket and the checkout lady put it straight in the normal bin in front of me! I was referring to the packaging more though - a box, a leaflet, a sealed plastic bag thingy, plastic labels that have to be removed, a little plastic stopper for the mouth piece. You’re meant to get 600 puffs per vape but every one I tried died after 2 days. That’s a huge amount of waste compared to the one bottle of juice I recycle each month and the coil I throw out every two-three months.

I vape, it’s how I quit smoking. I’d prefer to smoke, but it is the lesser of two evils, and I would encourage anyone who smokes cigarettes to switch. I recently went on holiday, smashed my vape and couldn’t find a replacement. I ended up buying the disposable kind from a supermarket for the first time and I was honestly shocked at how wasteful the are - so much unnecessary plastic that goes straight into the bin. But I was more shocked by how clearly geared towards children the disposable kind are - the bright colours, the flashy lights, the super sweet flavours, the high nicotine content. The one I bought was called YOLO ffs.

You see this way of thinking about poor and disabled people too, as if being unfortunate enough to require government assistance means you lose your agency too.

Didn’t the government just announce longer/more custodial sentences for shoplifters?! Free the rapists but lock up the petty thieves.

I’ve had 6 covid vaccinations and I’m still not protected. It’s not a case of “having the chance to get sufficiently vaccinated” if the vaccines don’t work on your immunosuppressed body, or if you can’t have the vaccine at all.

It’s unbelievably selfish to go out when you know you have covid. How hard is it to stay home for 5 days or so when you test positive ffs?! The fact that you don’t think staying home for a few days is “justified” when you literally risk killing someone vulnerable by not isolating is frankly shameful.

That’s a really good point. Thanks for the answer!

If someone donates a kidney to a stranger and later on something happens and they need a kidney transplant themselves, do they get a bump up the waiting list? I can see an argument for either side.